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refusing radiation refusing radiation

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  #1  
Unread 03-27-2003, 04:10 AM
refusing radiation

Hi all,

I was wondering whether anyone had decided not to have radiation, when everything had been removed, and there was no spreading to the lymph nodes.

When they thought my cancer was stage I the doc. said they radiate everyone "just in case".

Turned out to be stage III, so I was all for radiation - "do everything, just get rid of every last microscopic cell".

Now I'm not sure. Maybe we should wait and see if it recurs and then do radiation. Where would it recur, anyways?

Esther
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  #2  
Unread 03-27-2003, 06:10 AM
refusing radiation

Esther,
I'm not a Dr., but if I had Stage 3 cancer I would definitely go along with Dr.'s recommendation for radiation. With cancer, it's the not doing something that gets you in trouble. I'd rather look back in a year and say I did more than was necessary rather than I didn't do enough.
s,
Laura
  #3  
Unread 03-27-2003, 09:16 AM
refusing radiation

I can understand being hesitant about treatment, but like Laura I would not like to regret refusing it.I am about to start
external treatment myself ,following TAH/BSO for endrometrical cancer stage 1B.

Good luck Ester ! Maggie.
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  #4  
Unread 03-27-2003, 09:37 AM
refusing radiation

Esther,

I had internal and external radiation for a clinical stage 2B, surgical stage 1C (gyn-onc and pathologist never agreed on extent of cancer thus the double staging). I would do the radiation again in a heartbeat. Recurrences from endometrial can be local(i.e., vaginal) or distant, including the lung or brain, to mention a few. My gyn-onc is extremely well-regarded by his peers (in the Top Doctors' publications) as well as his patients. I would not have gone against medical advice on the issue of my need for radiation. You might want to do a Google search on "Nicholas Gonzalez, M.D." and "endometrial cancer." I recall reading about a woman in the New York area with endometrial cancer who decided to forego radiation in favor of an alternative medicine treatment regimen touted by Dr. Gonzalez. She had a recurrence that resulted in blindness and she ended up recovering a substantial medical malpractice judgment against him.

Best regards.

MoeKay
  #5  
Unread 03-27-2003, 12:06 PM
refusing radiation

I also can understand your hesitation to do the radiation. As with most medical procedures, there are risks -- nothing is perfect. You have to do what's best for you!

However, I would like to say that one thing I read on this site a long time ago was that the single best time to take care of cancer is the FIRST time you deal with it -- recurrances can be much harder to deal with.

I considered giving up optional, but highly recommended, chemo because it was making me so sick. A friend whose husband was dealing with a recurrance of prostate cancer told him what I was thinking, and he told her he would give anything to have had additional treatment options the first time he went through this so he wouldn't be dealing with it again.

Again, you have to make the decision that you feel good about for your situation, but these are just a couple of things to think about.

Let us know what you decide.

Joanie
  #6  
Unread 03-27-2003, 05:43 PM
refusing radiation

I would definetly choose having the radiation. i had stge 1b and was told no treatment was indicted. 9 month after surgery on a routine Pap They found a rice like growth on vaginal cuff which when biopsed was adenocarcinoma regrowth. I then had 28 external and three internal radiation treaments. The only hard part was the daily trips to hospital for the short 5 minute treatment. The only problem I had with r adiation was diarrrhea. I had no burning of skin or irritation. I wouldn't want to chance a reoccurence especially if drs are recommending it. I am at a year post readdiation now and pap this week is normal. Hope this will help you in making your decision
  #7  
Unread 03-30-2003, 05:24 AM
refusing radiation

I don't think I would have dared refuse, my mom and husband would not have let me .

Now radiation is closer than ever -
I was scheduled to start in about 2 weeks, today I went for simulation (is that the right word?) and they gave me an appointment for Thursday.

This seems like the perfect time to panic. I was hoping to have 2 more weeks to get back in shape (following the surgery). I only today began my usual walking route, and it took twice as long as it used to! Now I am worried I won't be able to keep it up.

I was told that the tiredness will only set in after a week or more, and that I will be able to function as long as I drink a lot and rest a lot. I am still doing that since my surgery. I have to get a life and stop resting so much.

One good thing - it will be over this much sooner.

Esther.
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