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15 weeks post op and still on liquid diet-help appreciated 15 weeks post op and still on liquid diet-help appreciated

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  #1  
Unread 03-29-2003, 03:01 PM
15 weeks post op and still on liquid diet-help appreciated

Hello ladies,

I just joined this afternoon and have been going through the posts. This is a wonderful place for information and support.

I had a TAH on December 10th of 2002. I had adenocarcinoma of the uterine lining. My first pap came back good. Since the surgery I have only been able to eat only a liquid diet and even sometimes have problems with the liquid diet. My thraot feels all scratchy and when I swallow it feels like something stuck in there. I have lost almost fifty pounds.

I have had many tests and nothing shows wrong and my regular family doctor and my surgeon say that things are just taking longer to get back to normal. My family doctor did put me on protonix and reglan yesterday to try and help me. It does feel a little better today but still eating only soup and boost or ensure and tea and water.

Has anyone else here had any problems with eating after the surgery or problems with their throat?

I did have to go back a couple weeks ago and have lympth node fluid drained and was in the hospital for nine days again and have more tests scheduled since there is still one pocket of fluid still there they are hoping will reabsorb to somewhere.

Thanks and any information appreciated very much.

Patricia52
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  #2  
Unread 03-29-2003, 09:03 PM
15 weeks post op and still on liquid diet-help appreciated

Hi,

I don't have anything to offer to help the specific problem, but I do want to offer my daughter's experience. Strange things can happen with surgery. My daughter had her thyroid removed due to cancer and she woke up with terrible pain in her ears. The doctors had no explanation. No tubes were inserted in her ears, nothing was done that should have affected them. It lasted for months. She saw four different ENTs and none of them could explain it. It did eventually resolve, thank God, but for the duration it was confusing and very upsetting.

As mystifying as these situations are, I believe they are not uncommon. Hopefully, your situation is a similar anomaly that will resolve itself shortly. I hope you begin to feel better soon.

Cenia
  #3  
Unread 03-29-2003, 09:53 PM
Same problems

Hi Patrica;

I have had the same problems surface since my surgery Jan 6, 2003. I also had problems with my bowels too. The problems with my tummy and the lump in my throat causes me not to want to eat or drink and landed me back in the hospital. I dehydrated. I ended up having to have the light put down in tummy and they said that I have GERD. The acid backs up in my throat and I choke on it and I end up vomiting. I can't lie flat and I have the same sore throat. I am on pantoloc 40mg twice a day and I have lost 18 pounds in 3 weeks. I never had this problem before my HYST. There are days that I dread eating now. My kids say a bird eats more than me. I too can only eat soft foods. I have found that milky or anything with acidy substance will kill me and hard food forget it. Very tiny amounts too and no spices either. Ask for a GI consult.

You should ask to have the light put down even though its nasty its worth finding out.

Denise
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  #4  
Unread 03-29-2003, 10:15 PM
15 weeks post op and still on liquid diet-help appreciated

Hi

Well what a bummer! :confuse: I'm really sorry that you are having problems so long after your surgery.

If you are certain that you have had thorough investigation (and do make sure of that) then you need to have patience. There are ways to get good nutrition even if you can only eat liquids or soft foods. It's amazing what a good blender can do!! It's also important to be eating (or drinking) almost constantly. When I have had serious problems with my bowels due to bowel disease I try to remember to always have a cup of hot chicken broth or home made gelatine or pureed squash or soup at hand. And of course lots and lots of water. But with the weight loss I tried to have most of what I put into me count. One of my favorite things was to make milk shakes with no milk - just yogurt and frozen fruit with flavoring and sweetener and a ripe banana. If the yogurt isn't OK, you can use canned fruits such as pears and peaches which are usually pretty good on the intestinal tract and dilute them with apple juice if you want to, and some water to keep the acid down. A ripe (spotted) banana will give some body to the drink. You can blend it with ice and get a freezie. Get creative and add herbs and flavorings - I love dill or melted cheese on pureed cauliflower or mashed potatoes. If you make it interesting you can get more calories into yourself and prevent the major weight loss.

Hope this helps.

Joselle
  #5  
Unread 03-30-2003, 04:12 AM
15 weeks post op and still on liquid diet-help appreciated

Welcome ((Patricia)), I'm so glad you found us
I had my Hyst in Jan 2000, I also underwent 2 additional surgeries for complications from Adhesions. The last one was in May 2000, emergency surgery for Bowel Obstructions & a Malrotation. I have suffered severe nausea & GERD since that one. I take Prilosec & Phenegran daily. I dont experience the throat pain tho, have your Drs tried doing an Endoscopy( tube/light) down there to look around?? It might hold some answers as to what is going on??? OTOH, it could aggravate it further
I'm sorry you have had to endure so very much Hopefully your Drs will be able to find some answers & relief for you soon
I hope you will continue to post...((((hugs))))
  #6  
Unread 03-30-2003, 07:20 AM
15 weeks post op and still on liquid diet-help appreciated

Welcome to Hyster Sisters (((((Patricia)))))) I'm so happy you found us: it really is a wonderful site. I'm so sorry you're having all of these problems

I haven't had these problems, but my dad had the same problems following surgery to remove a non-cancerous growth in his throat. For months he couldn't eat and was loosing an average of 1 lb a day. Since he'd also had a heart transplant several years before, this was a major concern to his doctor.

For months, a whole multidisciplinary team of doctors couldn't identify the source of his problems. Finally, after months of searching, it turned out that he had a massive throat infection. It took time (remember, this went on from July until March before the cause was identified), but he eventually went back to eating properly.

Please, do not be afraid to press your doctors to find the cause of your symptoms. Hopefully, you'll find relief real soon. Please keep us posted.

  #7  
Unread 03-30-2003, 09:37 AM
15 weeks post op and still on liquid diet-help appreciated

Hi Patricia !! Welcome to Hystersisters
I'm sorry you have been thru so much
What you describe sounds a lot like something I have - GERD. I had a upper GI & they also did the Endoscopy (scope) down my throat (wasnt that bad). It is controlled by taking Prevacid every day. If I happen to miss a day boy do I know it !!
I'm sure there is the possibility that it could be something else of course (I'm not a Dr.). I hope you start feeling better soon & you get some answers. We are here for you - whether just need to talk or if you need to vent

Susan
  #8  
Unread 03-30-2003, 10:07 AM
15 weeks post op and still on liquid diet-help appreciated

Patricia!

Welcome to hystersisters!!

I am so sorry you are going through so muchs. Lots of ladies have given you great advice, I only have one more plug to add in here, maybe a nutritionist could give some ideas on how to get the right amount of nutrients which your body needs to heal. Hopefully the protonix and reglan will help some more quickly.

Please remember you are one in charge of your own health and if you are not happy with the answers you are getting from your DR then it is your right to seek out another opinion or specialist.

In my thoughts and er for a resolution soon,
lenee
  #9  
Unread 03-30-2003, 11:32 AM
15 weeks post op and still on liquid diet-help appreciated

I agree that having an endoscopy (light down throat) may hold some answers for you. Mine was easy. There is no prep involved. My recommendation is to see a good gastoenterologist. Mine put me into a twilight sleep and I never knew what was happening. I awoke when all was done.
I know how upsetting it can be to have problems eating. After stomach surgery, I had and continue to have problems with eating certain types of foods. I will say that just knowing that mealtime is soon may cause you to release more acid and upset things further. If you can try and remain calm, you may have better luck.
You should not have to continue to suffer with this situation. Get a referral to a gastro.
  #10  
Unread 03-30-2003, 03:01 PM
Thank you all so very much

Hello Ladies,

I just came online to check out the site and saw all the wonderful, helpful posts. You all made tears come to my eyes and I am very grateful for the suggestions and help and so sorry everyone has such problems after this surgery.

Never in my life did I dream that I would have a problem eating after the surgery. It has been so hard not to eat what everyone else is eating and not eat at all and some days not even getting liquids down.

Today has been a better day. Yesterday, I just went to bed at six p.m. with tears in my eyes because I couldn't get my boost down even and I didn't get up until 9:30 this morning. I think I am depressed too. I hope this doesn't sound like I am feeling sorry for myself. I really try and stay positive but it is hard and I crochet and play cards and games on the pc and do some housework.

Today I did get a couple cups of decaffeinated tea down and this morning a fourth a cup of very runny cream of wheat, although it feels like it sticks to my throat in places and then I have to fight to not choke on it. I also got to drink one high protein boost. So, I feel full at the moment since most days I get nothing much down at all.

I find that I burp a lot and try not to cause that makes the feeling in my throat worse. My heart goes out to all of you who are going through this and so much more. Does it ever go away where you can eat again like a normal person and feel good again?

I remember when I got to come home from the hospital where they said you can't eat anything gassy or greasy...well I couldn't eat anyhow, but with this GERD or acid reflux is it the same way or is it just spicy or anything with tomatoes or stuff like that? I love tomato soup and was going to try it today but DH said it would probably not be a good idea because of the acid?

Does the tube and light down your throat hurt? Do you have to swallow the tube? I would probably pass out if I had to. One person told me you have to swallow it or they could make a mistake and it could go in your lungs. Scared to try that. I am such a big baby.

I do know that the cream of wheat and the boost are making my stomach burn. Feels like fire in there.

Thanks so much everyone for the warm welcome that means so much and for being so friendly and caring. This site feels like home already with lots of friends.

Patricia52

PS: I don't know how to do the little pretty icons yet but will try and learn how.
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