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15 weeks post op and still on liquid diet-help appreciated 15 weeks post op and still on liquid diet-help appreciated

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  #21  
Unread 04-01-2003, 11:01 PM
15 weeks post op and still on liquid diet-help appreciated

Patricia:

I hope you see this before your appointment tomorrow...you need to ask about that comment with the C-T.

A large hiatal hernia would not be unheard of following this type of surgery, and if that was seen on the scan, then you're well on the way to resolving your problem. Certainly a large hiatal hernia could lead to your woes! It's where part of your stomach/esophagus gets "stuck" up in the chest cavity above the diaphragm, and definitely treatable.

Your ulcer history is suspicious. And ulcers in differing locations can give you different symptoms. Also, since "plegm" is a problem, time to switch to soy-based products...and water, grape juice (REAL grape juice, not sweetened Welch's); nectars over ice; miso with tofu blended in...all are liquid, highly nutritious foods that make up for the milk. Often milk can disrupt the acid balance and intestinal balances, contributing to the problem.

Ask the GYN who he/she can recommend as a gastro. Surgeons are not qualified to perform gastroscopy (and don't let him tell you that he can...it takes a gastroenterologist trained in the techniques). What you CAN ask the surgeon, though, is about that possible hiatal hernia, and whether surgery would help if that's what it is.

good luck on tomorrow's appointment, and my s and ers go with you. Your surgeon should be able to help you mobilize the help that you need before this situation gets any worse...

Audrey
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  #22  
Unread 04-05-2003, 06:41 PM
Health Update-Just got out of hosp.

Hello Ladies,

I just got out of the hospital this morning. I passed out Wednesday night and ended up going to hospital by ambulance and then in the heart unit.

As far as I know, they figure I passed out from low potassium and soemthing to do with my stomach problem. I go for a stress test Monday morning and I go and have the tube put down my throat on Thursday morning.

The doctor put me on Reglan fourt times a day and continue the protonix. I can at least eat a little mashed potatoes and gravy but they had me on a regular diet. I also got some pudding down.

That was the day I went to the surgeon who does the endoscopy. He said he'd do a test for H Pylori, do a biopsy of the esophegus, and stomach and look for ulcers etc...etc...

So, no answers yet, but lots of tests to go through. I do not like the stress test though and it is the one where they use the mdicine instead of being on the tread mill. The heart doc said my heart was all right at rest, but he wants to see how it does when not at rest. Lord, I havn't done much of anything the past few months except be in hospital in bed and I am so darn tired, I don't know how I can do the stress test..

Sorry I didn't get back to all of you sooner, but I came on as soon as I could to let you all know.

Thanks so very much for everything.

Patricia52
  #23  
Unread 04-05-2003, 07:57 PM
15 weeks post op and still on liquid diet-help appreciated

Hi Patricia

I'm so sorry you ended up in such bad shape. It sounds like you will finally get the testing that you need to find out an appropriate treatment. I hope you find a solution soon, and please keep us posted.

Joselle
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  #24  
Unread 04-06-2003, 09:03 AM
15 weeks post op and still on liquid diet-help appreciated

Oh Patricia,
I am so sorry for all your continued troubles. But, at least it sounds like someone is finally listening to your body crying out for help.
I know the thought of more tests seems like more than you can take right now, but please remember that if these tests give them some answers to what has been going on, it will be well worth it. Remember in all of this that you are the captain of your fate and have the right to know what is being done and why as well as have the option to request additional tests as you see the need. Be your own health advocate, after all, it is your body.
You will continue to be in my prayers, as I am sure the other sisters here will echo.
Warm hugs and swift answers, my friend,
  #25  
Unread 04-06-2003, 12:09 PM
keep your strenght up

Hi patrica;

Been there where you are now you need to keep you strengh up. Try and get the mashed potatoes in. Thats what I do. I use the gravy to sofen my food also it kills my ibs but if it means me getting some food into me then I do it. I am now up to one meal a day. Horay for meal. I do make it an inportant meal. My kids sit there incouraging me and every meal that I manage that extra mouthful that theres that pat on the back. I also eat rice with sauces. I too am very tired but its from the lack of food that I eat and still the slow recovery of the HYST and the fact that I have a cyst on the remaining ovary. I am rooting for you. Keep trying cause you will be amazed what that extra mouthful will do gives you a bit extra energy. Email me if you want to we can encourage each other on.

denise
  #26  
Unread 04-06-2003, 11:34 PM
15 weeks post op and still on liquid diet-help appreciated

Patricia:

I know your energy levels must be very low right now, but a suggestion: you should get copies of your discharge summary from your doctor. You do have a follow-up appointment, with labwork scheduled? If an electrolyte imbalance became so bad that you had heart rhythm problems, they need to continue to follow it.

About the "chemical" stress test: I do a number of those. What the medication does is to raise your heart rate, similar to what effect exercise has. They increase gradually until you reach your pre-determined max, more or less. The most accurate would be a "Dobutamine stress echo" where a live ultrasound picture is taken of your heart at each stage. There is also another type of stress test, which is where they take pictures of your heart before and after exercise. Each of these is designed to ensure that your rhythm problem indeed stemmed from poor nutrition and electrolyte imbalance (caused by whatever is going on with your stomach). I suspect that's what they will find...that your heart is normal, but this problem with your stomach has contributed to these imbalances.

I have to admit, I'm surprised that they didn't do the gastroscopy while you were in the hospital, particularly with your history! It's not that bad, I'm a veteran of three without sedation, and I participate in something similar in cardiology where we do essentially the same thing. The sedation works wonderfully well -- I just wanted to be able to see for myself and drive myself home afterward, so I chose to do without.

Are they also doing swallowing studies? Sometimes a swollen thyroid can interfere with swallowing and digestion. I am hoping that they did gall bladder studies as well...blocked bile ducts due to gallstones can cause this problem as well.

Patricia, at least it sounds like you're on the right track to some answers. Honestly, it breaks my heart that you had to get this sick to finally get the workup that you've needed for weeks! . None of it is all that bad, though, I promise...and it will be so worth it to finally recover from this thing and be able to eat like a normal person again. It's going to take some time and patience, but recovery is possible!



Audrey
  #27  
Unread 04-06-2003, 11:37 PM
15 weeks post op and still on liquid diet-help appreciated

Patricia:

One more thing: about getting your records: when you go for the followup visit, just have the doctor xerox his copy of the discharge summary. You should take this to any and all specialist visits, if not fax it beforehand. The more information you and your doctors have, the quicker they'll be able to get a handle on treating your problems...



Audrey
  #28  
Unread 04-07-2003, 10:39 AM
15 weeks post op and still on liquid diet-help appreciated

((((Patricia))))) I'm so sorry you've had such a hard time of it Sounds like you might be on the right track, at least keeping down some of the foods.

I wanted to send special s and tell you that your in my thoughts and ers as you go for the various tests. Don't worry too much: the stress test should be ok. Let us know how you're doing, when you have a chance.

  #29  
Unread 04-07-2003, 12:49 PM
15 weeks post op and still on liquid diet-help appreciated

((Patricia))

I have been having some PC problems but have read your post and been praying for you. I am so sorry you had to end up in the hospital but I hope this will continue the ball rolling on you getting some much needed relief dear. We are all here for you, keep us posted ok?

Big s,
lenee
  #30  
Unread 04-10-2003, 03:44 PM
Endoscopy

Dearest Ladies,

You were all so right! It was a piece of cake! I was so scared though when I went in I think you call it pre op so they gave me what they called some happy medicine. Versed? Well...wow nice stuff.

My doctor talked to my friend Janet cause my hubby is sick and couldn't go and came home and had to send him to hospital and then go pick him up.

Anyway, the doctor told her that I have gastritis and the stomach lining is inflamed? He also told her soemthing about the esophegus being rippley or windy???? She said she didn't think that was right or good because it is supposed to be straight. ??? I have no clue. He done three biopsies and the hpylori thingy. He did tell my friend that it didn't look suspicious like cancer so I am hoping and praying not. I don't know how I could handle that again.

If anyone here knows how they treat this, please let me know. You ladies are just the best there is and I have never known such a great bunch of all of you and this site that I have come to love and find invaluable.

Patricia52
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