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Endometrial Hyperplasia & Cancer: Questions Endometrial Hyperplasia & Cancer: Questions

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  #11  
Unread 04-08-2003, 09:14 PM
Endometrial Hyperplasia & Cancer: Questions

The reason we are short of oncologists is that they go south for the higher salaries offered by American hospitals. Right now cancer patients can't get surgery here because of SARs. The focus is on trying to stop the outbreak and so all kinds of people are going to suffer. If they are wealthy they can go to the US for surgery. If we aren't (and I am not), then we just have to wait.

Even if I could see a gynie/onc he likely would not have access to my test results from the hospital and many of the labs are under quarantine too. This is what some oncologists were just saying on the television. They just quarantined a high school, for goodness sake. It may be months.

There is no plan in place to deal with the thousands of patients who need surgery. I can't believe it either. It is preposterous. Some doctors want one of the city's hospitals that has had no SARs patients to re-open and begin to work on the backlog from across Toronto. That seems reasonable to me, but the bureaucrats are not even doing that. My back hurts. I have suffered from fatigue for months. I have this sharp biting intermittent pain where I believe my right ovary to be. At least I'm not bleeding right now. Believe me if I could get this over with tomorrow I would do it. I am thinking a bottle of scotch+a swiss army knife+a staple gun+needle and thread and away I go on a do-it-yourself adventure.

Lia
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  #12  
Unread 04-11-2003, 06:48 PM
Endometrial Hyperplasia & Cancer: Questions

Hi:

I also had complex hyperplasia. I was told this after a period of heavy bleeding for two months, a cone biopsy, etc. I was told I should seriously consider a hysterectomy (due to family history). I elected to have a hysterectomy but keep my ovaries. My doctor was surprised when I was diagnosed with endometrial cancer. Get a second opinion. Do not wait too long.
  #13  
Unread 04-11-2003, 07:30 PM
Endometrial Hyperplasia & Cancer: Questions

Dear Lia,

My parents and I have been watching a lot of stuff about the SARS outbreak and its effect on Toronto medical care. I guess I'm not wholly familiar with the system up there, nor with the size of your city. Is it possible to drive to another hospital that falls outside of Toronto's boundaries? You probably would have already done that if it were possible, so perhaps this is a silly notion. But . . . there has to be *some* way to deal with non-critical cases while they're seeking a SARS vaccine. It seems cruel and inhumane to leave you flying in the wind. I hope things change for you soon.
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  #14  
Unread 04-12-2003, 05:04 AM
Endometrial Hyperplasia & Cancer: Questions

The hospitals are still quarantined right now, but the rate of spread is slowing. The public health officials are saying that they believe they have the outbreak contained.

There are no other hospitals to go to anywhere within an hour's drive of Toronto. I haven't heard of anybody being accepted into hospitals further away. I will ask my gyne about next time I talk. I would have a hysterectomy anyway with or without a second opinion. I am sick and tired of dealing with hyperlasia. A referral to a gyn/onc is not on. Our system is not the American, it is closer to the British. Everyone has free healthcare and that is great, but the system moves with all the speed and grace of a brontosaurus in a strawberry patch.

  #15  
Unread 04-12-2003, 05:27 AM
Endometrial Hyperplasia & Cancer: Questions

I loved your description of the British / Canadian healthcare system! (I am British.)

While it is certainly true that our system is more unwieldy than the U.S. system, and there is less direct patient control, there are nevertheless ways and means of fighting an obviously unjust situation. I had to do just this some years ago with regard to some treatment that I felt was being unjustly withheld from my son.

1. Write directly to the Unit General Manager of your local Health Care Trust. (You may have different nomenclature in Canada: basically the absolutely top director / manager of your district health care provider).

2. Write, enclosing a copy of the above letter, to your Member of Parliament (government representative) or better still, go to see him / her at a surgery for constituents (while also putting it all in writing).

I was advised to do this by my sister, who is a doctor. She predicted that it would, well, let me put this delicately, be akin to setting fireworks beneath the relevant derrieres. It did. Things really moved. Your M.P. wants you to re-elect him and your health care trust manager wants to be seen to run a good service and keep that massive salary coming in. Lean on them, if all else fails. It works.

Don't forget, your health service is not "free": you probably pay at least as much in taxes to pay for it as your southern neighbours do in health insurance. You have a right to demand a decent service. If that is truly unavailable locally, you have a right to be referred elsewhere. (British citizens can now be referred to other Euopean hospitals if necessary.) Good luck.
  #16  
Unread 04-12-2003, 06:00 AM
Endometrial Hyperplasia & Cancer: Questions

(((Lia)))

I can hear the frustration in your words! This SARS thing is very scary and it's hard to believe that it can cripple an entire city's medical care. And Hong Kong is even worse!

I hope things get back to the norm soon so that you can get your surgery done! I wish I could answer your question about how long it take hyperplasia to progress to cancer, but I don't have the knowledge of that. Hopefully your surgery will occur before that happens!

Good luck, Lia! Please keep us posted on your situation!

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