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Back from the urologist Back from the urologist

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Unread 04-11-2003, 05:48 PM
Back from the urologist

I give up! It was a horrible appointment! I cried to the doctor and told him I can't take this anymore and that on my worst days, it hurts so bad I can hardly move! He went into some explanation of nerves and hormones???????????????????????? He then told me how doctor's don't fully understand pelvic pain and that after 25 years of research, it's still not totally clear to him! It's hard to tell where the pain is coming from. It could be my ovaries and it could NOT be my ovaries. He gave me some vibrating device to massage my pelvic area where it hurts. I did that in his office and it actually made me feel worse. So, as a last resort, he gave me a muscle relaxer to take at night before bed since I have alot of pain during the night and first thing in the morning.....this is medication #7 that I am currently on. He was so cold towards uncompassionate. I really don't think he cared and when I started crying, he probably couldn't wait to be done with the appointment....I will tell you, that makes two of us! It was everything I could do to keep from completely going hysterical. I sobbed all the way home(1/2 hour drive) and sobbed to my husband. I feel so hopeless. I have lost faith in doctor's....when it comes to this. I can't go to another doctor about this because I can't take explaining the whole sad story to another person! I am just going to have to be in pain for the rest of my life....or atleast until I hit 20 years! Hey maybe my ovaries will shut down because of my hysterectomy?????? I can dream right? Who in their right mind would want their ovaries to shut down at the age of 31???????? Anyone who is in as much pain as me!

I am just rambling here. I can't even think straight. I'll have to update you more later. I am so sad. I am so disappointed! I feel like I got no where. I will be having the bladder distention in 3 months. The doctor wanted to wait three more months to give the Elmiron more time to work........why not wait 3 months????? What's another 3 months of horrible pain? I can't even get the courage to call my gyn. I'm at the end of this cycle, so I shoule expect my pain to ease up quite a bit in the next few days. My husband said next month, when I am at "that time" again, he is going to call my gyn.

Like I said.....I give up!
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Unread 04-11-2003, 06:02 PM
Back from the urologist

pasdechat, hang in there! The doctor you saw today shouldn't be (a doctor, that is). You need another one who can take on a challenge, not dismiss it.

Don't give up.
Unread 04-11-2003, 06:06 PM
Back from the urologist

I really do know EXACTLY how you feel sweetie. I've been there my friend. Take some time for yourself to regroup. I've done that numerous times over the years. I have to stop, take a deep breath, and than take a break from all the doc visits. Many of them disappointments.

But you know if I hadn't of continued on there are a few docs that are still trying to help that I would've never met. For every bad doc, there is a good one waiting right around the corner.

Do something nice for yourself this weekend, you deserve it!
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Unread 04-11-2003, 06:12 PM
Back from the urologist

Thank you Anna and Kim! Kim, you suggested doing something good for myself this weekend.....well, I started it off with about 15 double stuffed Oreo's Tomorrow I am having a Pampered Chef party, maybe I'll get myself something that I really really want! I plan to get into the hot tub later on! What a great thing to have!

After I got done typing up this post, my 3 year old son, said "are you all better mommy?" He knew I went to the doctor and now he thinks I'm all better how heartbreaking! I told him i was all better though and he seemed very happy and then he gave me a hug.....aaahhhhhhhhhhhhhh
Unread 04-11-2003, 06:28 PM
Back from the urologist

Oh ((((Pasdechat)))) I'm so sorry this appointment turned out to be a dis-appointment . I bet the hot tub will do you a world of good.... I am considering making a foray into mine this weekend as well.

I have to ask this, and please forgive me for not remembering... I know you kept your ovaries, but have any of your DRs ever done any tests to see what kinds of levels of hormones they are putting out? Or have they suggested hormonal treatments for your pain? Would it be worth trying something like OTC progesterone cream? Some ladies who are still pre-menopausal and have awful cyclic symptoms do swear by it. If you've already tried it, or there is a reason why you can't/shouldn't, please forgive me... I just hate to hear you in such pain, I want to try to help you

Your little DS sounds like such a sweetie.
Unread 04-11-2003, 06:38 PM
Back from the urologist

Surferbabe, to answer your question, no my doctor's have not done any tests to check my hormones. My gyn did suggest BCP's last Oct., but I didn't want to do it. I am now ready to do it. I will probably call him someday soon to ask if I can go ahead and go on BCP's since they worked before my hysterectomy. Right now, I can't even consider calling ANY doctor, so I will probably get a hold of my gyn sometime in the future.....after I have recovered emotionally from all my many disappointing Dr. appointments. maybe I sound dramatic, but after being in so much pain and not getting anywhere with managing it, I just don't think I can deal with it anymore!

Thanks for your reply
Unread 04-11-2003, 09:45 PM

Hey there sweetie...I was looking for your post today and hoping for much better news. Sorry to hear your appt today did not go well....

I understand your dissapointment and frustration. You've been suffering with this way too long. But, hang in there and you'll get some relief from something. I just know you will.

Unread 04-13-2003, 12:34 AM
Dr's and trying again


I am so sorry you have not found better medical care. Please please please do not give up seeking answers to your pain. Also, remember that it will take awhile to get relief even if the BCP's work and starting them sooner rather than later has a chance of bringing relief that much closer. I also know sometimes there is a point where you become afraid to seek treatment, because you fear it may fail or that the Dr. will not be helpful, and this will only hurt you. Do not allow your fears to run your life. I left my state several times because I had such trouble, which was well worth the effort, but I finally seem to have found an internist who is just a peach and smart as a tack, and a gyn who is wonderful and compassionate here in my very own town!

Of course, I wish I had found them both 5 years ago, but I am constantly amazed at what plans God has for us in our lives and how much stronger I am because of the awful experiences I have had. I have faith it will be this way for you, even if you cannot see it today. Please take care,
With love,
Unread 04-13-2003, 10:13 PM
Back from the urologist

I am soooo sorry your appt went so bad!!

DONT GIVE UP though!!! Yes, this is coming from ME, the one that cant stop complaining. I guess I need to count my blessings that my Dr cares and get over it.

I did battle horrible Dr's for years before finding the ones I have now though, so I know how you feel.

My suggestion.... Take a break, I know how much pain your in, and SEARCH for a GOOD DR that will listen to you. Best way to find one is by word of mouth.

I pray that you will find one that will help heal you instead of blowing you off.

Take care sis..
Unread 04-14-2003, 10:55 AM
Back from the urologist

((((((pasdechat)))))))) It's unbelievable the way you were treated I have no idea why some doctors are so casual and uncaring about our pain and illnesses

I'm glad you're going to pamper yourself a little: you deserve it, sweetie. I'm also relieved that your wonderful DH is not giving up and standing up for you How about having him there with you the next time you see a new specialist?

When you feel up to it, I would head back to your gyn and insist on having your hormones tested (it took me almost a year to find someone who would test them... I'm going for the blood tests on Wednesday) and insist on having the bladder distension test and other urological tests earlier. Just explain that you simply can't take another 3 months of this type of pain.

Sending tons and tons of s your way. Be good to yourself and come here anytime you feel like venting.

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