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Scared with Fistula Scared with Fistula

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Unread 06-25-2003, 09:07 PM
Scared with Fistula

Gosh I'm so glad I checked emails before I turned off puter.

CASEY!!!!!! It's over I hope and you will have a sucessful repair and rest rest rest. Yes, abdominal surgery HURTS. PLEASE listen to your body. Six - Eight weeks for anything physical...bending, lifting, pushing....etc.

Please keep us all up to date on you. I know it's hard to sit at the computer after this so just drop in when you can. Drink LOTS of water & cran...berry/rasbery juice...

What kind of cath do you have....and only one. You're doing GREAT!

Talk to you soon....((((((((((((((((((((((HUGS))))))))))))))))

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Unread 06-27-2003, 06:46 AM
Scared with Fistula


I am thinking of you sweetie and sending healing thoughts your way- don't worry about posting back- just want you to know I am here for ya and wishing you the BEST dear friend!!

Unread 06-27-2003, 08:41 AM
Scared with Fistula

Hi Casey,

So glad it's over & the healing process can begin. It helps to be back in your own bed. Take it easy & drink lots & lots of water. I also enjoy herbal teas & the warmth relaxed me. Short walks around the house helped me with the achy joints.

Sending you healing thoughts!
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Unread 06-27-2003, 09:30 PM
Scared with Fistula

Greetings fellow princesses-

I am now 1 week post-op and feeling a little better each day. I have a supra-pubic catheter, which I have to have for another 3wks. The place were the tube enters my body is so sore. Nighttime is especially hard. If I get tangled in my long tube then it pulls on my skin and wakes me up. Any suggestions out there? I'm trying diffeent kinds of taping. My legs are so sore and bruised from all of the tape I've used these past few months that I hate to use any more tape than necessary. I need to get ready for bed ,but just thought I would check in. Love, Casey
Unread 06-28-2003, 04:05 AM
Scared with Fistula

Hi Casey,

My skin is too sensitive for the tape but in the hospital they gave me a velcro leg strap that held the tube in place. I now purchase them at a medical supply store & be sure to get the wide band. Louise told me about placing neosporin around the exit site. Made a big difference so it didn't get crusty. It will get better with time. Rest, drink lots of water, eat well & short walks helped me but still took about 4 weeks until I started getting my strength back & dr's tell me I am a fast healer!

God Bless,
Unread 06-28-2003, 06:27 AM
Scared with Fistula

HI Casey

So happy to hear from you and that you are feeling better everyday!! Yeah I know about the tape issue- after a while you are just like raw meat on you leg- just try and move it around as much as you can and if possible have someone else tape it for you- that helps -they can see alot better and it doesn't hurt you to bend and look so to speak. My supra site didn't bother me, but as Terry said try the neosporin to keep it from getting dried out- that will help I am sure. At night I did not move much cause if I did and pulled on it- OUCH is an understatement.. try to surround yourself with pillows to keep from turning that did help me a little. But as we say- it does get better, be it one day at a time!!

Take care sister and have a good weekend..remember to rest, rest, rest!!!

Unread 06-28-2003, 06:45 AM
Scared with Fistula


Just another thought for you. You could see an ET Nurse at the hospital if you continue to have problems. Almost every hospital has one (stoma/wound specialist). They deal with cathaters & have all kinds of gadgets & bags along with ways of controlling the irritation. Had I known about ET nurses I would not have suffered half as much with my cathaters. They really are angels from above! Won't bother you again today because my dr was happy as a clam yesterday & released me to moderate activity. He also reminded me of an important item. I am very careful with pain medication but he enforced the fact that if you take it when you are hurting it has a place to go & you won't get addicted or immune. As he said illness should not be a torture test.

God Bless,
Unread 06-28-2003, 09:01 AM
Scared with Fistula

Hi Casey,

I know too well what you mean about the tugging of the supra sight. Yeah the neosporin (sp?) helped around the tube to keep it from drying up and far as taping it down....I was never sucessful and pretty much stayed in the entire time except when I HAD to go to doctor apt. etc. I would stay in my night shirt and usually used the big leg bag and planted myself on the couch except to get up and walk a bit and empty the bag, get water....I just stayed pretty still.

I must have slept real still. I was taking a lot of meds so maybe the meds knocked me out....

Just take it real slow. It's almost over.... ((((((((((HUGS)))))))))

Unread 07-02-2003, 08:28 PM
Scared with Fistula

Hi Casey

Just hoping you are feeling better today!! Just stopped by to say "hello" and let you know I am thinking of you!! Feel well sis and hope to hear from you soon!!

Unread 07-03-2003, 12:19 PM
Moving Like The Turtle...Slow and Steady

Dear Karen-

It is great to hear from you. I'm doing better. I'm having lots of trouble with constipation. The other morning my bag had blood in it which freaked me out. I'm eating lots of fiber and drinking lots of water. My supra is more comfortable since I've been using the neosporin. My Aunt is here from Washington D.C. to help me this week. People are amazing. Times like these help you to remember how much you are loved. I hope you are doing well.
Love, Casey

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