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Help from younger sisters in the Jungle Help from younger sisters in the Jungle

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  #1  
Unread 04-19-2003, 10:46 AM
Help from younger sisters in the Jungle

I'm 31 and haven't entered the jungle yet but the possiblility is there. I had a subtotal hysterectomy on Sept. 11, 2002 . I was supposed to have my cervix removed but due to severe adhesions to the bowel my doctor left it in. I was neither here nor there on the cervix issue so it was no big deal to me. I didn't go through a bowel prep and my doctor said had he tried to remove it and it tore the bowel it would have resulted in my having a temporary colostomy. So I was at the time happy with decision he made.
The first three months of my recovery was great, no more pains and I was experiencing mini periods only one or two days a month. Now here I am 7 months later and the mini periods have gotten heavier and longer. Last month I spotted for two weeks and the pain was unbearable. I have a high pain tolerence but I measured the pain last month a 10.
So, I went back to my gyne/surgeon and told him of my problems. He thinks the adhesion to my bowel is endo and we talked about the possibility of removing the rest of the cervix and my ovaries. I told him I would rather like to keep my ovaries.
He sent me for an ultrasound. He wants to rule out cysts on the ovaries. I am still waiting for the results from the ultrasound but I am a little worried about what the ultrasound will prove.
I am an xray technogist and I work at the hospital, I had the ultrasound done at the clinic where his office is and the ultrasound tech there wouldn't tell me anything. I mentioned that I was an xray tech at the hospital hoping that she would reveal what she saw on the ultrasound. When she was done with the first stage of the ultrasound I asked her "How do my ovaries look, do they look OK" . She hymned and hawed and said " I can't really say that". At first I thought nothing of it cause I know they don't say anything at the clinic but the way she said it got me thinking...."she can't really say that" meaning she can't say anything or she cant say they look OK. I know I shouldn't worry but you can't but help it. My appt with my doctor is on the 29th of April so I will learn the results then.

This is where I need help from youngers sisters in the Jungle. I would like to hear of your experiences in the jungle and what life for you was like after you got here. What sort of hormone balance worked for you and what do you recommend. What was your libido and sex like after.

Your help would be greatly appreciated. I would like to learn all I can before I enter the jungle. Hopefully I wont have to but I doesnt hurt to learn everything you can.

Thanks in advance. (Sorry it's so long winded.)

Karen Gerber
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  #2  
Unread 04-19-2003, 11:16 AM
Help from younger sisters in the Jungle

I too am 31 and am 9 days post-op from a total abd. hyst, bilateral ovaries and tubes removed, cervix and appendectomy removed too. What you have been through is almost identical to my experience. I had scar tissue on my bowel, liver and bladder and that is why I dedided to have everything removed. The endometriosis was ruining my social life, my marriage and work. I was in so much pain all the time. I am hoping that this is going to be the miracle cure. So, far is has been a rough recovery but everyday is a little better. I have just started on Aygestin (progesterone) because of the hot flashes. I haven't been on it long enough to what effect it is going to have. I, too, have no idea about this hormone thing. What I read is so confusing. I wish you the best of luck with your ultrasound. I was lucky that I knew immediately what my ovaries looked like because it was done in the Dr. office. I has four golf-ball size cysts on mine, which I knew without the ultrasound because my pain was unbearable. Hang in there and if I find any good information out about HRT, I'll let you know.

Best of luck.
Beth
  #3  
Unread 04-19-2003, 10:14 PM
help

Thanks for the response bebecrump. I appreciate it and would very much to learn from others trials and tribulations. Keep me posted on how your HRT travels go.

Karen
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  #4  
Unread 04-19-2003, 10:32 PM
Help from younger sisters in the Jungle

Hi Karen

I am 33 and had a TAH/BSO on 2/28/03....i've suffered from endo for many years...my appendix was removed as well because it looked like a shribbled pepper....my doc never said i had the worst case of endo, i even asked one day if it was "severe" and his only answer was "it's severe enough to cause pain" anyway, my left ovary was completely attached to my pelvic wall (the worst pain i've ever felt) however i have been on birth control for many years and had light periods and no cramps for a long time.

The decision to have a TAH/BSO was easy for me because i don't have time to go down for another 6 weeks later in life for this surgery.....do it all at once and get it over with. I am now in my 8th week of recovery and LOVING life. I am pain free, no more bleeding with intercourse (which, by the way, i am having ALOT of) for many years my DH was turned down for sex because it either hurt, bled or i was tooo tired. HE is sooo happy now, as am i.

As for hormones, since i no longer have a uterus (or cervix and ovaries) my doctor has me on .1mg Climara patch...i love it. Some people have had problems with it sticking, i haven't, but i feel really good. NO symptoms of menopause. I am not on progesterone(which is to ready the uterus for pregnancy...DUH i don't have one) or testosterone (right now) and they may come later....but right now i'm young, and FREE....sooo FREE and so happy....let us know how you do...
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