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CA 125 good-how much can I count on that? CA 125 good-how much can I count on that?

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Unread 04-24-2003, 10:28 AM
CA 125 good-how much can I count on that?

My CA 125 was "9" and I feel a tremendous sense of relief! My doctor has told me though it is not a sure indicator. I have a pelvic mass on the left side. Has anyone gotten such a good CA-125 reading as this and still been malignant, or is this a pretty sure sign there is no malignancy?
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Unread 04-24-2003, 10:41 AM

CA125 is best used as an indication of how treatment is working after surgery if cancer is found. Even then it's not foolproof. That yours is 9 is indeed a great sign and would be one thing pointing away from cancer. However, this needs to be combined with the ultrasound and CT scan results. It is possible to have false negatives and false positives on CA125 readings--some will be higher than normal with no cancer; others will be normal with cancer. I now have a friend whose recurrence if you canimagine was delayed 7 months because her CA125 was four and then rose to6--VERY low numbers so "they" were sure it was something else. They kept seeing a cyst but were sure it couldn't be cancer--it was and treatment got delayed because CA125 is not a good marker at all for her. Yet, when mine went from 8 to 38 in two months and then 38 to 161 in one, the CT scan confirmed recurrence. I'm very sensitive--which is fine with me.
At this point, I'd say breathe a sign of relief--one test looks good.
Unread 04-24-2003, 10:48 AM
CA 125 good-how much can I count on that?

Margaret, thanks so much for that info! One more question, then I've got to get back to work--I am at work right now--I had an ultra-sound done, but no CT scan. My mass is fluid filled. Is it common for there not to be a CT done in a case like this, or do most women have an ultra-sound and also a CT scan?
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Unread 04-24-2003, 12:14 PM
CA 125 good-how much can I count on that?

s Annie

Quite possibly a good indicator that the mass is benign. Keep those hopes alive!

Unread 04-24-2003, 04:49 PM
CA 125 good-how much can I count on that?

Sounds good to me, Karenann!! Thanks!!
Unread 04-26-2003, 07:20 PM

Please don't think I'm making things worse but everyone assured me a CA125 of 11 was a sure sign my ovarian cyst was benign. It was a borderline malignancy and 5 weeks later I needed a TAH other ovary removed cell washing and lots of sampling. That was April 15. Everything was contained and taken out. Although tumor board will review it. My surgeon said ca 125 is a better indicator after a diagnosis to see what progress treatment is making. I wish you the best and a low number is still better than a high one.
I am doing very well and so glad to have the surgery over with recovery has been easier than I expected.
My thoughts are with you
Unread 04-26-2003, 08:33 PM
CA 125 good-how much can I count on that?

Harryson, you aren't making it worse, you are just helping me to see it clearly--that it isn't an "all clear" as some seem to think it is. And I didn't think that it was, if I understood my doctor correctly, but I still wasn't sure. Thanks to you and others for helping me to understand it a little better. I'm glad your cancer was contained and they think they have taken care of it! I'm sure you must still worry though. Also, it sounds good that recovery from the surgery was easier than expected!! Someone in another thread was referring to the staples in their abdomen and I about fell out of my chair. STAPLES in your sore abdomen?? I was expecting stiches. I find it a bit hard to imagine staples! gulp Also, a doctor's exam after one week! That's just a couple of days after you get home. See, I sweat the small stuff as well as the major issues. Thanks for sharing with me, and many blessings to you!!
Unread 04-27-2003, 10:27 AM

I sent you an e-mail, but I received it and I'm not sure you did. Anyway, The staples didn't hurt and removing them wasn't bad either. That's really all he did at that 1 week post op. He covered the incision with steri-strips which I guess just fall off on their own. I worried about everything also, but it really has all been easier than I ever would have expected. Keep in touch any time. Do you have a gyn onc. just in case?
Unread 04-27-2003, 10:54 AM
CA 125 good-how much can I count on that?

hmmmmm! I didn't get your email! Wonder why?? I've exchanged emails with 2 or 3 folks on this board. I guess something went wrong somewhere?? That's encouraging information though about recovery and about the STAPLES!
I don't have an gyn/onc. I have my meeting with my doctor to discuss the surgery in about 2 weeks. Does your ob/gyn usually recommend you see a gyn/onc? This is the first, and hopefully the only time I've ever been through anything like this, so don't know much!!
Unread 04-27-2003, 01:09 PM

The gyn i had who did the laparoscopy would not have been able to deal with a malignancy alone. She would have been assisted by an oncologist. Since I knew what I was dealing with for the 2nd surgery I got a referral to Boston to a gyn/onc. Discuss this with your gyn and see how she would handle it in the hopefully unlikely event that it is not benign. It's good to have a plan even though we all hope and pray there will not be a cancer.

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