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  #1  
Unread 04-25-2003, 01:06 PM
lymphodaema

Hi - any of you sisters had problems with lymphodaema after radical hyster and lymphadectomy. Had RAD for cx ca stage 1b in feb and I noticed a few weeks ago swelling around and under knees and pitted skin similar to orange peel on the skin to the inner thighs just over knees.
I am assuming this is beginning of lympodaema.

If anybody has had this problem - what did you do to get rid of it. I would appreciate any advise Is there any excercises I can do to help pump the fluid up - it looks like pools under my knees. Is is enough for us all to deal with cancer and surgical menopause without this.

Hugs to all you sisters.
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  #2  
Unread 04-25-2003, 03:17 PM
lymphodaema

Call your DR first. My DR assumed that was what I had, but wanted to make sure everything was under control cancer wise. I had a CT Scan. Everything was normal. So she sent me to physical therapy. There are not many clinics in the US that specialize in the treatment after hyster. They gave me tube like stockings to wear, exercises, self-massage and a whole list of do's and don'ts, what to eat, what to wear, etc. Then had me start wearing these REALLY supportive pantyhose. It did help a lot. Feel free to e-mail me at < admin snip of email address for privacy/safety--please use email button below> if you need more info or get to the point where you just need someone to talk to. It can become frustrating! Hang in there.
  #3  
Unread 04-25-2003, 06:18 PM
Life After Cancer Treatment

The National Cancer Institute has written and published a booklet entitled, "Life After Cancer Treatment." The booklet is part of the Facing Forward Series, and has a section on lymphedema. It contains a lot of other useful information for cancer survivors as well.

You can call 1-800-4-CANCER to obtain a copy. To make certain you receive the correct booklet, I would reference "NCI Publication No. 02-2424 (printed May 2002)" as well as give the above title.

Of course, as the previous message stated, your first call should be to your doctor's office to request evaluation and treatment of your medical symptoms.

Good luck--

MoeKay
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  #4  
Unread 04-27-2003, 09:47 AM
lymphodaema

Chris,

I have lymphadema from having lymph nodes removed during breast cancer surgery.

I did see a physical therapist that was trained in manual lymphatic drainage. It is a light massage of all of the lymph node areas to stimulate them to compensate for the missing lymph nodes and bring the protein rich fluid into areas with nodes to help circulate the fluid. I know how uncomfortable the lymphadema can be. (I am not in the medical field so please excuse my explanation - it is based on my understanding of it).

Call your Dr. (surgeon) tomorrow so that they may refer you to someone. Doesn't this just add insult to injury? Sorry that you have to go through this. It is a condition, and I know that I will always have it, but it can be brought under control. It is very important that you avoid any infections and treat all cuts with antibiotic ointment.

Good luck.
  #5  
Unread 04-30-2003, 11:03 AM
lymphodaema

Thanks everyone for the replies - am going to the doc to discuss this today so hopefully I can get it resolved before it become permanent!!!!!!




see ya
chris
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