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Can I complain a little? Can I complain a little?

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  #1  
Unread 04-26-2003, 11:37 PM
Can I complain a little?

I want to just throw my hands up in the air and SCREAM!!!! I am 5 weeks post-op from my 3rd surgery and have been getting a little better each week until the last week or two and now I feel like I am at a total stand still. My doc who did this last surgery is telling me that I should be feeling good and be back into normal activities aside from heavy lifting and I'm NOT feeling good!!!

I have been trying to increase my activity and have gone on two walks this week, the first left me very sore for two days after but I felt a little better after 2 days then I went again last night and today I am in awful pain,it didn't hit until mid afternoon, this just can't be right! I know that I am having some adhesion pain, I am familiar with what that feels like at this point, but now I am feeling once again the old familiar hernia pain associated with my incision.........I JUST had incisional hernia repairs and I have hernia mesh from hip to hip and from my belly button to my pubic bone.......is it possible to have ANOTHER hernia....?

Sorry for venting........but with each surgery I had hoped that THIS one would be the ONE that would get me out of this pain...I am SO disappointed. I know my doc thinks I'm a hypochondriac..I wish he could live in my body for just one week! NO one day would do it! I just don't know what to do or how to feel at this point...............I can't have more surgery. I know I am early in recovery but with my doc telling me that I should be fine at this point.it makes me feel like a failure...(sad)

Thanks for listening.

Dawn
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  #2  
Unread 04-27-2003, 02:59 AM
Can I complain a little?

Hi Dawn,

I know how you feel. I was told by one uro that I could return to work months ago with a supra cath in. My gyn just laughed at that. Just getting dressed in the mornings wears me out. I am just waiting for more surgery right now. Hope you start feeling better & don't over do.
Terry
  #3  
Unread 04-27-2003, 06:11 AM
Can I complain a little?

((((Dawn)))))) You can complain anytime you feel like it: that's what we're here for

(((((Sweetie)))))) I'm so sorry you've had this set back in your recovery I wish I could go over there and give you a in person, if that would help.

Take it easy, sweety, listen to your body and keep your fingers crossed that this is a temporary set back. Do mention to your doctor that the little bit of activity you've done has sent you into this pain flare up. There might something that can be done to bring you relief.

Sending tons of s your way. Please keep us posted.
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  #4  
Unread 04-27-2003, 06:56 AM
Can I complain a little?

(((Dawn)))

So sorry you are having such a hard recovery- but just remember how much you have been thru- I have to remind myself at least 25 times a day.. I am 6 weeks post-op from 2nd surgery and still get so fatigued and achey that I think there is something wrong with me..just getting dressed is a milestone for me.. I just plug along during the day with some mild pain relief meds and tell myself I can do only so much..

My kids are sick of me saying I am "tired" and often finish my sentence for me.. just try and take it slow. we don't want to go back to where we were that is for sure..so I will wish for all of us the strength we need to make it thru the day!!

Hope you don't feel so alone and know we are all praying for one another!! have a good day and sending a warm your way!!
  #5  
Unread 04-27-2003, 07:49 AM
Can I complain a little?

Hi Dawn

I'm sorry to hear you're so frustrated. I have to admit that I'm relieved in a selfish way, as I'm about 10 weeks post and am having many of the same symptoms. I, too, thought that by now I'd be living a 'normal' life and am pretty bummed not to be. I'm tired and sore and am feeling discouraged. So just knowing that I'm not alone is of some Hope it is to you, too.

No matter what any says (I'm expecting to get the same song and dance from my surgeon next week) we all know that our bodies will do what our bodies will do. Multiple surgeries and personal stress is going to impact us and all we can do is the best we can do. So try to help yourself heal. And I guess I'd better do the same!
  #6  
Unread 04-27-2003, 11:05 AM
The thing about pain ...

...is that, especially if it has been around for awhile, the nerves really do become all fired up and it is very hard to calm them down -- when they become even the least bit irritated (maybe by overdoing it?), sometimes it just feels the same as it did before the surgery, even though things may be getting better. I don't know that this is what is happening with you, but in my experience this seems to happen sometimes.

I am a bit over 4 months post-SAH for adenomyosis and seem to be having (for lack of a better scientific word) phantom uterus pain (it's OK to laugh with me about this). I am still a little sore from surgery, though it is getting better, but when I overdo, or am tired or tense, I really feel the exact same kind of awful pain, even though I no longer have a painful uterus. It's my Dr's theory that these nerve pathways for pain get set up in our brains and it takes awhile to calm them down, especially after surgery, because there is still tissue damage -- you are still healing! -- and the pathway is there, so there may be pain, even though the original "problem" has been fixed.

Please be kind to yourself and give yourself a chance to heal!
With love,
Loretta
  #7  
Unread 04-27-2003, 02:49 PM
About the nerves getting fired up...

Hi Loretta,
I think you are right about the nerves fibers becoming more sensitive after they have been "abused" with pain signals for years... That seems to be the problem I am having now... at least I sort of hope that is what it is and I don't need more surgery.

The pelvic pain specialist I saw had described the same thing to me. He is hoping the anti-depressant he put me on will calm things down. I am having significant pain from the vaginal cuff scar such that he could barely touch it with a q-tip... It seems to radiate through my entire pelvis from there.

SOme days I get really tired of this and I feel like I would just like to "jump" out of my body for a few hours and experience what it feels like not to have pain day in and day out... That was so long ago I can't even remember.... my hysterectomy was supposed to be the end of my pain story but now it seems like it was just the beginning of another chapter.

I hope everyone has a good rest of the day.

SBlumen
  #8  
Unread 04-27-2003, 05:52 PM
Thanks Ladies......

I really needed your words of encouragement and the 's, you ALL are SOOO appreciated. Thanks!!

I'm just so disappointed about not feeling much better...on one hand I am telling myself...HEY! You are ONLY 5 weeks post-op but then I have doc telling me I should be fine.it's just aggravating. I ASKED him to change my pain medicine to something LESS strong at 2 weeks post op..BUT........I have built up a tolerence to pain meds (I am only aware of this thanks to your great info Sheri...thanks) and I am just NOT getting the relief that I need. The med I was on I could take 3 and sometimes 4 times a day and it rarely crossed my mind (until I was in pain usually 5-7 hours). The med I am on now requires me to take two of them at a time and then I only get a minimum of relief and only for a couple of hours which leaves me watching the clock and thinking about pain relief 24/7 and when is the next time I am able to take it. I just don't see how he is doing me any favors by changing me from something that worked well and I could take 3-4 max a day to something that I am having to take 6-8 a day and not getting adequate relief. I just want to feel better!! and I don't want to have to fight to get pain relief while I am recovering...is this asking too much?

I need to go in there and stand up for myself but I don't.......... I just say okay to whatever he decides and leave. I'm not good at arguing. I don't know how much more of this I can take though and I don't think it's fair that I should have to suffer through recovery.

I guess I am just venting some more. Thanks again for the support ladies. I don't know what I would do without ya'll.
Dawn
  #9  
Unread 04-27-2003, 09:37 PM
Can I complain a little?

Dawn,

I had my second surgery in 9 months on March 18th - to correct a vaginal vault prolapse and sew in mesh. Am happy to report that I've needed no meds for pain, but after trying to resume my daily walking lately, my "swelly belly"/incision area becomes so sore that I can barely do anything for 2 days. DH comments, "You're walking funny again". I get so frustrated that I can't regain my strength and my life. I know it takes time, but I'm tired of being sore, achey, and just plain TIRED, too !!! I try to remember that it took at least 8 weeks until I began to feel halfway "normal" after my first surgery.

Hang in there. I'm sharing your mesh soreness ... if there is such a thing!

Kajsa
  #10  
Unread 04-28-2003, 03:54 PM
Doctors and Pain Meds

I have found that sometimes it works better if I don't take adequate pain relief before my Dr's visits (depends on the Dr. more than me, and I don't advocate this, I'm just saying it has worked for me when I am having trouble communicating with the Dr or when I am seeing a new Dr.) -- then I am almost or in tears and they see me when the pain is at its worst and I can say "This is what it is like for me."

For most of the specialists I have seen, this only takes one visit, and they realize, yes, this woman is truly in pain. Sometimes they go on their experience of other patients, not on history with you, to judge what "appropriate pain behavior" is, if there is such a thing, and if you don't seem as if you're in enough distress, then it doesn't register as severe enough pain to warrant the more effective pain medication.

There are plenty of studies out there that have shown that severe pain can become severe chronic pain if not managed well enough early on, so take a really deep breath, and call your Dr's office and say "This isn't working for me. I need something else." The worst thing they can do would be to say is no. Then, I would say, it may be time to find another Dr.

Take care and good luck!
Loretta
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