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Can I complain a little? Can I complain a little?

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Unread 04-28-2003, 05:21 PM
Can I complain a little?

Very well said ((Loretta)) I've personally encountered many Drs who *accuse* according to their perceptions of what a so called*drug seeker's* behavior is I'm sorry but when you are such severe pain, the last thing on my or anyones for that matter, mind is how I'm being percieved:ugh:
Thanks again for your wonderful posts..(((hugs)))
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Unread 04-28-2003, 05:21 PM
About doctor attitudes toward pain patients

I can relate to doctor's making general assumptions about pain patients (ie. maybe they just complain about everything).

When I had my hysterectomy I had spinal anesthesia. Previous to this I had experienced 8 laparascopies and 2 c-sections all with general anesthesia. I had also delivered 2 other babies with no drugs. I bounced back from the c-sections quickly and in the first case went home after only 48 hours.

After my TAH, my experience was quite bad and I think the doctor and the nurses basically ignored me. I had terrible pain even though I had morphine injected in the spinal which was supposed to help ALOT for 24 hours. I was in tears but was told I could not have anything and it always hurts after surgery (It had never hurt like this before though).

Soon after I started experiencing terrible headaches and nausea and an inability to stand up without getting completely nauseated and almost vomiting.... of course, everyone just assumed I was complaining about "normal" things even though I kept telling the nurse that I had never had such a hard time after surgery before. I was released for home and spent the next several days in bed, unable to get up and barely able to eat. The doctor told me over the phone it was probably a migraine and prescribed Imitrex (I Had never had many headaches or any migraines before and he never even bothered to examine me). Finally I called the Anesthesiologist (who happened to be my neighbor) and talked to him. He took me seriously - FINALLY. He had me come down to the hospital and at about 10pm in the evening did a blood patch on my lower back. It WORKED immediately. I had been suffering from a severe spinal headache for a week and my complaints were dismissed repeatedly - and I still think that was because of my history of chronic pain.

ANyway, that's my spinal headache story.

At two weeks after my hyst I had my one and only post-op check. I was experiencing pain on my left side which the doctor palpated causing me to jump. ANyway, he said I was still healing and everything was fine. Over the next several months I wrote him two letters explaining that I was continuing to have the pain on my left side. He never had me come in and told me everything was fine and it would take 6 months to heal. Now at 9 months I visit a pelvic pain clinic and see a specialist and find out that I really do have something abnormal and painful going on... ANyway, that's my other story.

Sorry to be so long winded. Guess I am just felling frustrated.

Unread 04-28-2003, 05:39 PM
Can I complain a little?

Big ((hugs)).. I've encountered s similiar experience such as yours. A few years ago I was hospitalized for severe was a week stay. One of the multiple tests performed was a Spinal tap, actually it was done 2 x b/c of some error Boy do those Spinal headaches situation was very much like yours...refused for some relief!
It's bad enuf to live w/ severe Chronic pain but to have no relief when there is relief available is ridiculous....I have a few articles that really show just how bad getting some relief can be:

Additional Resources for Patients and Patient Advocates:

Battling Back: Overcoming the Undertreatment of Chronic Pain:

Questions You Should Ask About Pain & Pain Treatment:

Pain Management:

For chronic pain, contact the American Chronic Pain Association at or call 1-916-632-0922.

For cancer pain, contact Cancer Care at or call 1-800-813-HOPE, or contact your local American Cancer Society office.

For a list of organizations that specialize in a particular disease or disorder, contact the American Pain Foundation at or call 1-888-615-PAIN.

Good Luck & big (((hugs))) to each of you
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Unread 04-28-2003, 09:50 PM
I went to see Dr today (early)....

I had rehearsed in my head all morning what I was going to say to him and how I was going to stick up for myself..(pitiful huh?) anyway..........I got there and was pretty quiet to begin with as usual.....he did his normal exam and said that "I am just NOT healing the way he would expect me to" WOOHOO ....first victory of the day and I have hardly said a word yet!!!

When I was in the castle immediately post-op , my biggest complain was of my right OUTER thigh??????? doc didn't do ANYTHING in this area but the pain was tremendous! and even the dilaudid didn't begin to touch it! First, second and third post-op visits...I complained adamently about this thigh problem and (although I have a GREAT doc) he kind of blew it off and told me it was most likely nerve damage and it would get better soon...this thigh pain has continued to be a problem.....not 24/7 but when I move in a certain direction it quite literally feels like someone is stabbing me with a hot sharp knife.....a pain that almost brings me to my knees. I have mentioned it at EVERY post-op visit and at every post-op visit it has been blown off.

I got in the shower this morning, getting ready for my 10:00 appointment, almost an hour away and AGAIN this thigh pain! I did a detailed inspection and there was a purple area on this portion of my thigh, just smaller than my fist and slightly raised, I actually got a pen and tried to outline it in case it went away so I could point out the exact area to the doc but I couldnt find a pen that would write on my skin (weird??) Anyhow...long story short....I again brought up this thigh pain and doc again tried to blow me off and I said "NO, how can nerve damage cause a purple area to come up on my thigh?" at this point he took a closer look (the spot was slightly there BUT still visible) he now thinks that it may be a deep hematoma and based on that and the fact that I am not healing as he would like.....he suspects I may have yet ANOTHER incisional hernia AND I am having alot of pain on the left side that I have been chalking up to adhesion type pain but considering the fact that I had a cyst/mass of adhesions the size of a canteloupe come up in less than 4 months in the past...he has scheduled me for an MRI on Thursday. Now I feel like an idiot for not making a bigger issue of this sooner. It's not that I am a wuss (or maybe I AM) but I try really hard to NOT be a difficult patient. I guess because I work in a dental office (when I work) and I know how it is to deal with "difficult" patients. Has anyone had any experience with hematomas that could give me any insight to how they "felt" or how they are resolved or any risks involved?

He also did increase my pain meds and said something about sending me to pain management if my need for pain meds continuied...which kind of ticked me off and I made my feelings known about that! I told him I felt it was quite soon to be considering pain management since I was only 5 weeks post-op and he himself had said that I am NOT healing as expected.

This is probably not the norm...but I have been to a PM clinic and I got the impression that this clinic was in the "business" of handing out narcotics and that was it!!!! I never at any point felt like they were trying to get to the "root" of what was causing my pain, that they were only interested in handing me a script and seeing me back next month. I complained to the PM doc that I felt like he wasn't doing anything to find the CAUSE of my pain and it was then and ONLY then that he sent me for x-rays, which is why I refused to go back and sought out another Dr, and it's a good thing that I did or there's no telling how big my canteloupe sized cyst would have become!!! The clinic that I went to scheduled (and this is NO exaggeration) 8 patients every 15 minutes, there is NO WAY that DR can be providing REAL pain management!!! I am NOT knocking pain managemnet by any means....I know that it can be a life saver to many people and even when I was in this one, the pain relief that I was given was much appreciated it was just the fact that nothing was ever done to find the source of my pain that made me look twice.

Sorry to have gone on for so long, I just wanted to update you ladies on what had happened today. Keep me in your prayers that all turns out okay on the all know how it goes..we want to know but we also don't want to know what these tests show.

Lots of s

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