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Mother of 5 diagnosed w/High Grade desplasia/Tumor Mother of 5 diagnosed w/High Grade desplasia/Tumor

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Unread 04-27-2003, 07:38 AM
Mother of 5 diagnosed w/High Grade desplasia/Tumor

I am 37 yrs. old with 5 children (including 2 1/2 yr. Twins) Last year I was diagnosed w/High grade desplasia (from my first doctor) He did multipal biopses (sp.) uteran,cervical canal, cervical. And only one came back as HGD. He never did an Ultrasound and Hyster. was the last resort! I HAVE 5 KIDS, THE TWINS WERE BORN CES. AND I WAS FIXED! What do I need my uterus for? I've had HEAVY bleeding for about a year now. Three weeks ago I was doing some gardening and had a gush of blood, I thought nothing of it (I always bleed!) I went to the bathroom and pulled out my tampon which fell right out because it was soaked. I then remembered when I put it in, it went to the left? So thought maybe I forgot one that was already in and that was the reason it didn't go straight in? So here I go fishing for the tampon I may have forgotten about! SURPRISE!!! I thought what may have been my uterus falling out.......It was a tumor! First I called my doctor (Ob,Gyn.) And told him my Uterus is falling out (The sky is falling Henny Penny!) He was VERY rude and told me he was leaving the office for the weekend and I could not see him until Monday! Then reasured me he has women who come to him with there uteruss' down to there knee's! WHAT AN A-- H-LE!! Excuss me but I'd rather not wait that long! My husband insisted I go to the emergency room, We went! I had a bad infection of my cervix and a tumor! I also got a referal! I went to she a Ob/Gyn near me and she ordered a ultrasound which confirmed the tumor! I already love her since she is willing to do the hysterectomy, and she's oriental, If she clip's bonsi tree's she can do any thing on me!! She is a very good doctor and I am very Blessed to have her as my Doctor! Now I am going in for anothr biopse (sp.) on Tuesday 4/29/03 I went to the hospital for my blood work yesterday (pre-op?) My tumor is taking up my whole vaginal cavity. Yes, I am afraid. But, What ever God has in store for me, it is his will! I am spiritually ready to Die but, and afraid of what I'm leaving behind! 5 children!! Oh my mother died of Uteran, ovarian, and cervical cancer at 51yr. THANKS MOM! lololol What I would like to know (if any one know's?) Can you have only fibroid tumors and still be diagnosed with High Grade Dispasia, is it possible??? I'll know if the tumor is cancer 2-3 days after 4/29/03. Isn't it strange that Sharron Ozbourn went in for a routine physical and walked out knowing she had colon cancer, and normal people wait....and test....and wait....and test....and so on?
Talk to me every one, Any one?
Faith Perakis
Plainfield, IL.
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Unread 04-27-2003, 10:36 AM
Mother of 5 diagnosed w/High Grade desplasia/Tumor

Faith, I'm hoping someone will come along who can answer your specific questions, as I cannot, but meanwhile, I hear someone who is reaching out and needs to talk. Bless your heart, that first doctor sounds no good for anything, and you are better off rid of him!! I'm so glad you have a new doctor. My ob/gyn is a woman and she is more compassionate and understanding about women's issues than the male ob/gyn I had all of my adult life. He was a good man and a good doctor, but they cannot see through the eyes of a woman--they cannot hear with the ears of a woman. In many ways we are like a broken toaster, and of course we need someone with the knowledge to repair broken toasters--but we are more than that, too! You've had, IMHO, some very dramatic symptoms going on for a while, and I can't believe your first doctor didn't at least consider a hysterectomy in light of all you have said! Your biopsy is just a couple of days away. You sound like you're ready to get some answers. My surgery is scheduled for May 22nd to remove a pelvic mass on my left side and for a TAH. God bless you, and I hope you hear from some others. There's some wonderful, wonderful people on this board!!! You need some good support right now! Let us know when you can how things went, and meanwhile do get on here and talk. Heck, we all need that!!! That is what this board is for!!! God bless...
Unread 04-27-2003, 11:19 AM
Mother of 5 diagnosed w/High Grade desplasia/Tumor

s Faith

It sounds as though you like your new doctor alot. However, it sounds to me like you should be seeing a gyn oncology doctor.
They are the experts when there is a possibility of gyy cancer.
Please consider consulting with one as soon as possible.
Best wishes to you.

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Unread 04-27-2003, 09:15 PM
Mother of 5 diagnosed w/High Grade desplasia/Tumor

Dear Faith,

I know that doctors are only human, and that they deal with a lot of stress. But I do believe that when they make mistakes or are inapporpriate, a letter should be written.

That said, I am really happy you found another doctor that could help you. She sounds wonderful. But as Karenann said, it might be in your best interest to consult with a gynecological oncologist.

I know God hears prayers, and I knjow that he will help you through this difficult time. Don't think about dying. Think about healing so you can continue to be a wonderful mom to all your beautiful children -- especially your little twins!

We will all be thinking of you!

Unread 04-28-2003, 06:41 AM
1 more day until biopse!

Wow!!! I just woke, got myself a cup of coffee, plugged in mu computer and "Good morning!" You ladies gave me 3 reply's! I didn't even think I would get one! Yes, I will be consulting a gynocological oncoli.....Excuse me for being a terrible speller! But I 'm sure you know what I'm talking about! Any way, My Doctore who is ob/gyn, did say if the biopse comes back as cancer I will need to go to a specialist which you ladies had suggested. I can't eat or drink anything after 6:30pm tonight! I do not understand, I am not being put out? In fact I want to do this without anastetic. I will check back Tuesday or Wednesday.
Thanks for your reply's !
Faith Perakis
Unread 04-28-2003, 07:20 AM
Mother of 5 diagnosed w/High Grade desplasia/Tumor

It sounds like you are having a cone biopsy and yes, you want to be knocked out if that is the case. The doctor needs you immobilized and it would be very uncomfortable if you were awake for many reasons. The also need to streach out everything to get a good look. You need to do a search on it, there are some good explainations out there. I know you like your new doctor, but she should have explained what she was going to be doing better.
As for getting knocked out for the first time (my first was when I had a cone), it was scary, but no big deal after it was over and done. Just don't make my mistake and stop for a Whopper on the way home. Give your stomach sometime to get things started again, try jello and soft foods for the first day.
Also, don't go home and pick up the twins, after every biopsy I have been told to not lift anything for 2 weeks. Ask the doctor about restrictions after.
Take care and good luck.
Unread 04-28-2003, 10:23 AM
Mother of 5 diagnosed w/High Grade desplasia/Tumor

Let us know how it goes, Faith!! Good Luck!! (I would be put to sleep to have a tooth filled if they'd let me!!)
Unread 04-28-2003, 01:57 PM
Mother of 5 diagnosed w/High Grade desplasia/Tumor


I pray everything goes well for you. The doctor that discovered the tumor in my vagina wasn't very nice either, but the rest have been good. The waiting time is the hardest. I hope you have help with your children
Unread 04-28-2003, 04:33 PM
Mother of 5 diagnosed w/High Grade desplasia/Tumor

I am so sorry that you are going through this. I was 35 and had two young children when I had my hysterectomy. I am glad that you found a good doctor. Try not to jump to the worst conslusion now. You still are finding out information and in the end the tumor could be benign. The waiting is the most difficult. Good luck.
Unread 04-29-2003, 06:06 AM
Faith, I wish you well...

My original gyn fit the description of yours...I agree that you need to consult with an oncon-gyn. Good, good luck to you...! Keep us posted. You will be in my prayers!

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