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RLS (Restless Leg Syndrome) RLS (Restless Leg Syndrome)

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  #11  
Unread 05-04-2003, 11:43 PM
RLS (Restless Leg Syndrome)

Hi, I also have RLS. It was very mild before my surgery, a LOT worse for a few weeks post-op, but is now settling down again.

My mother has suffered from severe RLS for most of her adult life, so I am familiar with the toll it takes on a person. She has been an "activist" trying to educate the public and the medical community about this disorder. She facilitates a bi-monthly support group and I put their notes up on the web for them. This last month, they handed out Medical Alert Cards to all their members, which I found very interesting because the card lists all the various medications that should be avoided when one has RLS. If anyone is interested in seeing the card with the list of medications, it is posted currently at www.gsrls.org/alert.htm.

Please forgive me if I sound like I am pushing my website - I'm not! (It's not very professional anyway). But I do want to share the info about RLS and medicines.

Otherwise, earlier posts have included the most important RLS websites, especially the RLS Foundation (www.rls.org).

Good luck, and I hope all of you who are suffering with RLS will find relief through one or more of the resources offered in the posts on this thread!
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  #12  
Unread 05-05-2003, 10:26 PM
RLS (Restless Leg Syndrome)

I had a TAH/BSO last December. I have likely always had RLS, but it was only diagnosed after chronic anemia and after my hyst (anemia can bring on/worsen RLS.

I am seeing a Sleep Specialist. Trazadone is helping with the insomnia, but I need Mirapex for the RLS. Mirapex works with the Dopamine in your brain, and is also a med used for Parkinson's Disease. Another older drug that is like Mirapex is Cianament (not sure of that spelling).

Good luck coping with RLS!!
  #13  
Unread 05-06-2003, 11:02 AM
RLS (Restless Leg Syndrome)

((((Sandy))))) Thanks for providing the link to the Medical Alert Card. I found it very enlightning:

RLS is rampant in my family: My mom has a very mild form of it; my sister and I have it, a slightly more severe form of it; my niece and my daughter both have a very severe form of it... in my daughter (7 yo) it is sooooo severe she is oftentimes unable to sleep. And my son has it.

My son has ADHD and, among other things, is taking Risperdal. We've noticed that since he started that med, his RLS is a little more severe (he hardly ever complained of it before). However, it will go away in the evening. Reading this thread, and your card, I realize that the Risperdal probably worsens the RLS but that the Trazodone he's on to help him sleep most likely calms it down.

I was also interested on the caution against antihystamines: I have severe seasonal allergies and Benadryl is the only thing that helps it. However, when my allergies peak is also the time when my RLS peaks and I always assumed that it was because I would be more tired... hence the worsened RLS symptoms. Guess it the allergy meds that are aggravating it.

You can't win: one med improves one condition, but worsens the other!!!
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